A patient organization that helps people with Duchenne/Becker muscular dystrophy and other rare early-onset neuromuscular diseases. They promote and advocate for the interests of patients and members, creating conditions to improve care and extend the lives of patients. For more information, visit the website.

Running the Dopatra Club which caters for children, young people and young adults who are in or at risk of a difficult life situation and who do not seek standard forms of help and care in specialist facilities. The aim is to reduce the possible risks associated with their way of life.

We operate a center for foster care for children. We hold regular group meetings. We provide expert advice or individual consultations. We facilitate weekend stays for parents with children.