We are a community of people, municipalities, businesses and non-profit organizations with a common goal of developing a defined region. We have the form of a non-profit entity with joint decision-making mechanisms and the application of partnership.

A patient organization that helps people with Duchenne/Becker muscular dystrophy and other rare early-onset neuromuscular diseases. They promote and advocate for the interests of patients and members, creating conditions to improve care and extend the lives of patients. For more information, visit the website.